Below is a summary of the priorities and outcomes from the respite summit.

Establish respite as part of the continuum of care

Propose legistation to create funding for lifespan respite

Develop a turbo-website for identifying eligibility for respite and other programs (Expand LouisianaAnswers)

Recruit non-social service members to expand coalition (bankers, public relations, etc.)

Incorporate the lifespan Respite Coalition as a non-profit 501 (c)(3)


Click on the following links for News and Events.


2017 La DD Council Converence

News Releas on Family Caregivers for Adults who are 65+ by The National Academies of Sciences, Engineering and Medicine.

Hot Weather Tips for People with Disabilities and Chronic Conditions.

Alzheimer's and Dementia Care Relief Grant Program

The Governor's Office of Disability Affairs Newsletter

National Family Caregivers Month 2015

November is National Family Caregivers Month

Respite Fact Sheet.

Early Onset Dementia.

Mom may need a break.

November is National Caregivers Awareness Month.

National Family Caregivers Month

Louisiana Lifespan Respite Coalition - 10/28/2013

NCOA - 5 Tips to protect yourself during open enrollment - 10/09/2013

The Caregiver's Advocate Volume 2, Issue 2

For information on Home and Community-Based Medicaid Waivers for Respite Support:  Louisiana Table of Medicaid Waiver Information related to respite, 2016

The National Alliance for Caregiving is a proud member of ReACT (Respect a Caregiver’s Time), launched the Employer Resource Guide: Four Steps for Supporting Employees with Caregiving Responsibilities, a free resource to help employers adapt to employee caregiving as the “new normal” in the workplace.

Please visit for more information and to download the free Employer Resource Guide. - 11/20/2013

Information & Support for In-Home Dementia Caregivers was developed by the Veterans Health Administration (VHA) Office of Rural Health. This educational series is designed
to aid caregivers who are helping a loved one suffering from dementia including home safety, legal matters, dealing with problem behaviors and learning
relaxation techniques.


Some new resources on caregiving, now available:

The AARP Public Policy Institute (PPI) has a series of blogs on the new rule for Medicaid home and community-based services (HCBS) issued last month by the Centers for Medicare & Medicaid Services.

In case you missed it, the Alliance held a webinar on “Better Work, Better Care: How Employers Can Support Family Caregiving” which featured speakers from the national ReACT Coalition. Replay available at

The Washington Post profiled caregivers and seniors in the Washington, DC area. Read the article here:

From the National Alliance for Caregiving. Learn more about us at

Continue the conversation online!

Caregiving in the U.S. 2015 Report
Caregiving in the U.S. 2015 is a joint research study between the National Alliance for Caregiving and AARP providing new insights into higher-hour caregivers (at least 21 hours of care a week), caregivers ages 75 and older, multicultural caregivers (including African American/black, Hispanic/Latino, and Asian American/Pacific Islander populations), and the challenges facing caregivers in the workplace.
Some highlights from the study include:
  • 82% care for one person who is likely either living with the caregiver or living within 20 minutes of the caregiver.
  • 60% of caregivers are female. The typical caregiver is a 49-year-old female caring for a 69-year-old female relative, most likely her mother.
  • 40% of caregivers are male.
  • 34% of caregivers have a full-time job, while 25% work part time. Caregivers who work do so for 34.7 hours per week on average.
  • Caregivers have been caring for 4 years on average, spending 24.4 hours per week helping with activities like bathing, dressing, housework, and managing finances.
  • 32% provide at least 21 hours of care a week, on average providing 62.2 hours of care weekly.
  • 38% of caregivers report high emotional stress from the demands of caregiving.
The study was made possible through generous sponsorship from AARP, Archstone Foundation, Eli Lilly, Home Instead Senior Care, MetLife Foundation, Pfizer, UnitedHealthcare, and the Family Support Research and Training Center in conjunction with the University of Illinois at Chicago.


Cognitive Issues

The AARP Public Policy Institute has released the third in a series of papers on caregivers providing chronic medical care. The paper, Family Caregivers Providing Complex Chronic Care to People with Cognitive and Behavioral Health Conditions, reports on results from a national survey showing that caregivers of family members with challenging behaviors were also likely to perform medical/nursing tasks, such as managing medications. The paper is based on additional analysis of data extracted from a national survey of 1,677 family caregivers, 22 percent of whom were caring for someone with one or more challenging behaviors. While family caregivers often must provide such care for family members with challenging behaviors, there is little or no instruction or guidance on how to do this important work. This paper offers recommendations for assisting family caregivers who play this dual role.


[Caregiving Listserve] from the National Alliance for Caregiving
A new article from Howard Gleckman in Forbes calls for better care for the 40M+ family caregivers in the U.S., who provide roughly $470 billion in care annually. These caregivers, often invisible to the care system, make a huge impact on our health and well-being. The care they provide is slowly being recognized by more states through legislation and other programs - as Gleckman says, "We have a long way to go, but it is at least a start."

We're interested in continuing the conversation on caregiving. If you have something to say, send it to Grace at **This email address is being protected from spambots. You need JavaScript enabled to view it.** to be shared with this listserve.

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